Good days, Bad days

Well, today started well....I am feeling a little better so, I decided to finally go get the massage that my brother in law bought me since my main symptom is pain. It helped a little at the time, but after getting up and around I felt achy again. In general, my breathing still is difficult...mostly if I talk a lot :) or eat. I am very fatigued, but working on getting up and around to get my energy back.

One thing I do want to tell is that we got the test results back on Jadyn today and she DOES test positive for the gene HLA-B27 which is what I am dealing with. It is the gene responsible for the autoimmune process. She will see a rheumatologist within the next month. She is a very active little one, but has off and on complained of joint pain, cried, and limped with it. So, keep her in your prayers because we want her to be one of those that has the gene, but never deals with any "active disease".


Ok, on to my highlights of my day......the good things that made me smile....Jadyn announced to her class that it was my birthday and thirteen 3 year olds sang to me :) and when I picked her up, they had made me a wonderful card. I got a few new things for my trip to New York at the end of this month...I know, you are wondering how in the world with all of this am I going to New york...well, so am I, but it is my motivation. I am so excited to be able to see NYC decorated for Christmas....a quick 2 day trip with my sweet friend, Lorren :) Ummmm, other highlights, jadyn and cady taking pics of Seth and I tonight (I think they might turn into little photographers), actually going to eat at Outback with my family - including my mom and stepdad, getting tons of calls and emails, Seth smiling at me because I love his smile, sweet hugs from my kids, and best of all....feeling a peace tonight despite all that is happening.